Monday, April 6, 2015

The Day My Filter Died

I have had these thoughts wrapped in my head for weeks now, and kept them in because it's a reality that to be a blogger, you have to write about rainbows, puppies, and the perfect afternoon outing with your perfectly coiffed and dressed children, your perfectly designed home, and cooked meal and never ever show the mess in the kitchen ;)


Well you know what? that just isn't real.  I can't fake it anymore.  I love my kids and I love my life, and sometimes our "perfect" outing or vacation is hijacked by autism or some other co-morbid diagnosis that goes along with it.  My kids are rarely tolerated by public places,  my genius kindergartner was kicked out of Kumon because he was reading and scripting the instructions to the teacher repeatedly, and she would not tolerate a non-stepford child.  Even though he could have worked circles around the "neuro-typical" kids in there, the quirks of autism were more than was going to be accepted in Kumon, so we left, and I accepted that woman telling me "he needs therapy before he can come here", "we can't be expected to tolerate his behavior".  Well honey, thanks for telling me something I don't know - no I didn't say that to her, I just took the bullet she shot at me and let it stew for awhile.  Well no more of that.  My kids are amazing, and sometimes  HERE IS WHAT I AM NEVER SUPPOSED TO SAY OUT LOUD.  Sometimes the Neuro Typical kids in the world are a little over-rated, spoiled and nightmarish, but yeah, my kid reading the instructions over and over and needing 10 minutes to adjust to a new environment, yeah, that's the real problem. 

You know what else I'm going to be real about, my fitness journey.  Yes, I lost 80 lbs, yes, I gained 30 back, yes I'm trying to get them back off.   It's hard, it's frigging really really hard, but being fat is miserable, so I push through the hard, and sometimes I fail, and sometimes I stay in bed and not workout, and sometimes I run really really slow.  I disappoint myself, and I shock myself too, with what I'm able to do.  I eat ice cream in the middle of the night out of the container in the garage.  So there, it's out there, it's real, stand up if this is you too.  I will still be running 2 half marathons barely trained for next month, praying I don't die or injure myself too much.

As an autism mom I always feel like I fall horribly short.  I am inconsistent sometimes, I give up too soon on a therapy or a treatment, my follow through sometimes falls short because I frankly am exhausted, physically mentally,  and spiritually.  I do the best I can, and sometimes I feel like in all areas my life that others do it better.  So sometimes I hit it out of the park, and sometimes I strike out, I just need to find the balance.

As a school parent, I fall short, because I'm the "special ed" mom, and the school barely notices our kids.  But I'll tell you where I won't fail your kids, is voicing the truth where their safety and well being our concerned.  While PTA meetings sit mostly empty and most moms expect those moms to do it, you're missing out on having a voice for your kids education. While many were busy making a perfectly orchestrated family photo at Corona Del Mar, the government snuck in something called Common Core, that is untested, unproven, and lower standards than we've ever had.  If you're busy trying to show the world your perfection.  Common Core is invading your perfect kid and going to make him or her a drone that is not university ready.  And while I appreciate the perfect image all over Instagram, show up at a board of education meeting or school board or PTA meeting occasionally so you can see what the intentions are for your kid, and speak up if you don't agree, this Common Core is basically going to ruin a generation.  For a special ed mom that's horrible and something I can't stand for.  My kids can do everything, they are different, they are not less, they aren't the same as a typical child, and need accommodations for that and Common Core is going to take it away, well I have a voice, I am their voice and I will scream this until you all pay attention.

So I apologize if the new "real" isn't the lifestyle of OC you want to see.  I'm just not that perfect picture, I have flaws, and I work them out.  You probably won't see my family on the PR promotions of families at amusement parks, or restaurants, or cool family shows.  We are a real family, and not the picture of perfection that sells the tickets to the places people go.  But if you want to show how to navigate OC with special needs, and quirks and how to manage them with a kid or kids with special needs, I'm your girl. 







1 comment:

  1. Hi Rebecca,

    I work for the company that produces Mutual of Omaha’s Aha Moment campaign; check out www.mutualofomaha.com/aha to see what an aha moment is and the incredible stories we’ve filmed over the last several years. As I came across your website, I couldn’t help but think that you might have an aha moment to share.

    For the 6th year, we’re taking our 34-foot Airstream mobile film studio on the road again for the 2015 Aha Moment Tour, visiting 20 cities across America to capture inspirational, life-changing aha moments from folks all over the country. We are headed to Irvine, CA on May 4th and 5th and would love to invite you to share an aha moment, and how your life has changed since. It can be about your work, your family or other life experiences. You would just have to step into the Airstream studio for a few minutes and tell your story on film to our tour producer Jessica Henry. Your video will then be posted to www.mutualofomaha.com/aha, where you will be able to share it with your friends and family via email, Facebook and Twitter!

    On May 4th and 5th from 10am to 6pm, we will be parked at the Irvine Spectrum Center, near the Ferris Wheel, at 670 Spectrum Center Drive, Irvine, CA 92618. Here is a map link to the location: https://goo.gl/maps/LM93C

    We’d love to have you. Let me know as soon as possible and I can reserve your time slot.

    Many thanks!

    Olivia Lasky
    tour@ahamoment.com

    Follow the Tour:
    twitter.com/myahamoment
    facebook.com/myahamoment
    instagram.com/myahamoment
    youtube.com/myahamoment

    --
    ahamoment.com

    ReplyDelete

 
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