Thursday, February 7, 2013

The Rant of a Mom with 2 Boys with Autism

Today I got this article from a friend posted on my Facebook page.  I know she had every good intention when she sent it.  I am not in the least upset at her.  However, the article did make my blood boil, as do most that come out about Autism.   Because I am seriously now just calling BULLSHIT on most of the medical community and the media on their ridiculous claims about Autism.

Are they afraid to say, “We really and truly don’t have any idea what causes this”?  Because for the love of Pete, that is the honest to God’s truth.  NO ONE KNOWS 100% WHAT IS CAUSING AUTISM.  There are a lot of theories, claims and minutia thrown out and the media spins it in a new way every 2 – 3 months.  Let me tell you what these little 200 word articles do to the parents of children with autism, it is the equivalent of ripping their hope and hearts out of their bodies and throwing it in a huge bucket of shame and pouring acid on it.

Let’s look at all the “articles” that I have had well meaning people send me in the last 4 years.  What causes autism? 
  • Refrigerator mothers, cold, unfeeling women that do not bond with their child that causes the social ineptitude in the kids.   I’m Italian – that is INVALID immediately
  • Age of the mother,
  • Age of the father,
  • Living too close to a freeway,
  • Living near a farm that used pesticides. 
  • Lifestyle choices of the parents,
  • Mitochondrial abnormalities (GENETIC)
  • Vaccinations, (ENVIRONMENTAL)

Shall I go on, or do you get my point?   I have also gone to Doctors, well respected Doctors in the autism community who told me that because I had breast cancer that could have lead to higher causes in autism, and after that little gem that made me feel like I had been punched in the stomach- he also decided to tell me after looking at my kid for 5 minutes in a tent at a picnic that my child was having seizures while we were sitting there. You must know, I wanted to punch him in the throat (after I spent 5 days in Children’s Hospital getting an EEG on my 5 year old too make sure he wasn’t having seizures, which he was not).  I also had this other hippie patchouli oil smelling Doctor tell me because I had drank even one Diet Coke in my life could have been the environmental cause to my kids autism. 

This particular article has a variety of things that are pretty much put in perspective as to what autism families are forced to wake up to frequently.

Melillo does believe that autism is often a result of environmental factors combined with genetic predisposition.  The most potent lifestyle factors are diet and exercise and inflammation in the body.
                                   
Wow!!  That’s ground breaking Doctor.  Autism is a result of environment and genetics influences.  Almost as original as designing a floral dress in the Spring.  GAWD.

Melillo identified numerous preventative measures parents can take to better ensure their child will not be born with autism. All of these measures are included in his book, Autism: The Scientific Truth About Preventing, Diagnosing, and Treating Autism Spectrum Disorder -- and What Parents Can Do Now.
“One of the things that we looked at are things like… pre-natal vitamins,” Melillo said.  “Taking pre-natal vitamins three months before and for the first month of pregnancy lowers the risk of having a child with autism by 60 percent.”

Did you pick that statistic up?  If you take your prenatal vitamins in your first month of pregnancy – Do the majority of women even know they’re pregnant the first 3 weeks? And the last 3 months of pregnancy you decrease your risk of autism by 60%.  So you have a 40% chance of autism if you DO take those prenatal vitamins?  Honest to God????? That’s the best you can come up with?  You have got to be kidding me.  All to publish a book, this is what you are offering people?  Why don’t you say it like this okay 40% of you women religiously taking your pre-natal vitamins you still have a chance of having a kid with autism? My God, isn’t that some sort of malpractice?  Doctors have to name some kind of cause of autism that blames the mother.  It’s INSANE.  It couldn’t possibly be the mercury filled, preservative laced vaccinations that are given at a ridiculously fast pace to a tiny little body under 20 lbs., could it?????
 
And for what I agree with on this article is this:

As for where the future of autism reearch is going, he said it will delve more into the mechanisms behind the disorder.
“I think it's going to go towards understanding what is really happening,” Melillo said, “and understanding how the brain regulates the body. You know, people don't realize that the brain regulates the immune system, your digestive system.  Most food sensitivities and allergies and immune problems really start in the brain, and I think all of this is going to go towards understanding the brain, how the brain affects the body, how this can affect somebody you know before they are having a child, and how this is actually affecting the child”.
So, all of you Doctors and your over weaning egos need to address this, and work together, I have been to and watched and heard way too many doctors dismiss treatment, therapies, and parental observations of their autistic children because frankly it didn’t fit into an agenda they want to promote.  You all need to work together and come up with a variety of treatments and things that will help autistic children.  You have to have heard the phrase “If you have met one kid with autism, then  you have met ONE kid with autism”.


I have 2 kids with autism and they couldn’t be on a more different places on the autism spectrum. 1 vaccinated and 1 not.  One is severe, and one is mild/moderate on the spectrum. One verbal, one non-verbal.  One is social (mostly inappropriately) and the other has no idea there are any other people on the planet than just a few of us.   So I feel like Autism x 2 24/7 has given me a voice, a rather newly intolerant voice for the CRAP that is thrown out at families with autism.  The way our world is rocked and changed forever the minute we get the diagnosis is enough.  To be forced every 6 – 8 weeks to look at a RIDICULOUS article stating and placing blame on everything that may or may not cause autism because some Doc or Researcher paid a Public Relations firm to get their name in the paper or their book some sales (I’m not trying to speak for any other autism families, just mine – but I think a lot of families share these same sentiments). 
 
So to the medical autism community, can you do all us autism families a favor and GET ON THE SAME PAGE, or at least don’t poo poo every possible idea that doesn’t agree with your beliefs.  Some stuff is working even if you roll your eyes about it.  Moms and dads of children with autism have done more to bring awareness and action to this horrible epidemic and to have your smugness thrown at us is infuriating.  We all need to work together – NO MATTER WHAT IS WORKING FOR THEIR KIDS.  Parents know what it working for their kids, be it diet, TMS, therapy, biomed, Son-Rise…. Ad infinitum.  Get on Board for the kids and their families, we are with them 24/7 not just the 20 minutes you see them every 6 months.

Thanks for the rant.

Rebecca

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